Day +8. Had a pretty good day, no throw ups or blow outs. We got a 3hr pass and we walked around the university grounds with the Knutson grandparents and showed them the olympic oval where they still do speed skating. Bash was fussy and not himself once we returned and we think he was having pain - not sure where, possibly bone pain and/or throat. We increased his IV pain meds to see if he felt better overnight and in the morning. Not much else to report, waiting for those cells to engraft... any day now. Love my little mister.
Day +9 started with two huge blowouts, IV lines covered in poo and needing to be changed out, then a bath, a late nap and finally some much needed platelets as his counts were getting low. We kept Bash on IV morphine today for pain and it seemed to help him feel better. We moved rooms as his cultures from his fever last week showed nothing and they took us off isolation! I think we have been in almost every room on the unit now. In the evening the hospital put out a code grey - an air quality advisory - it was super smoky from the BC fires. We could really smell it in the air in the hospital.
Not much to report for Day +10. Blood counts were stable, still waiting for Bash's white blood cells to show up which will tell us he is starting to engraft. Kept him on IV pain meds again and he was his happy self. Still smokey out so we stayed inside. Bash enjoyed playing with grandma and grandpa K who brought some new toys to entertain him. It was great having the grandparents around as Nate and I could spend an hour or two together outside of the hospital and I was able to get home to shower and nap in my own bed.
Day +11 was just an ok day. We started with a huge blowout again that got poop on all the IV lines and they had to all be changed. Bash was pretty tired and slept a lot. He had a big puke in the afternoon and mostly just wanted to be cuddled today. Still at zero immunity. Have him on IV morphine as his throat seems to still be bugging him. Hoping for a better day tomorrow. We got this buddy, we all love you so much!
Day +12. Bash was very tired and slept in until 9am instead of his usual 7am wake up. He had lots of naps too and was pretty cranky. His red blood cells were low (hence the lethargy) and he had a transfusion which perked him right up. Still no white blood cells, and our BMT doctor had a great analogy today... He said engraftment is like waiting for the sun to come out and light up the dark. I like that. Bring on the sunshine.
Day +13. Bash was happier today with a bit more energy - thanks red blood cells. He got platelets again for low numbers, and his red blood cells were better. Had a big throw up overnight (had to change me, him, and the crib bedding) and then threw up again in the morning, we gave him gravol which helps. Nurses and doctors said he is doing awesome! Keep it up buddy!
Day +14. We have been in the hospital 3 weeks now. Bash vomited twice this morning and his NG tube got blocked. Nurses tried everything and were ready to pull it out, but Nathan googled how to unblock NG's and his method worked - Hero of the day! This was great because then we didn't have to re-insert it and cause trauma to his sore throat. Bash then had a visit from the music therapist (always a favorite), had some long naps, even tried a bit of food today. I think I can see some light on the horizon (this was because there was a small 'blip' of white blood cells this day! I didn't want to jynx it by posting and getting everyone excited, and the next day they were down again).
💚 Love you baby boy!
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